In re J. C.

OPINION OF THE COURT

Bruce M. Kaplan, J.

J. C. has lived but 6V2 years. Unfortunately, his life has been one of acute distress because he is afflicted with a rare and particularly debilitating strain of hemophilia A with a severe factor VIII deficiency, and a high inhibitor factor.

The complexities of his medical condition necessitate the most thoroughgoing preventive measures. He requires an exhaustive regimen of medication, and near constant monitoring such that a layperson could not perform those vital tasks without intensive training.

At all times J. must remain in close proximity to a…